Table 1: Funding Recipients
|
Registry |
Lead applicants |
Awarded amount |
|---|---|---|
| Canadian Acromegaly Registry; Lumiio Inc. | Dr. Victoria Hodgkinson | $191,250 |
| Canadian Bleeding Disorder Registry (CBDR); McMaster University | Dr. Alfonso Iorio, Arun Keepanasseril | $199,456 |
| Canadian Fabry Disease Initiative (CFDI) Registry; Nova Scotia Health Authority (NSHA) | Dr. Michael West, Kaye LeMoine | $148,915 |
| Canadian Hereditary Angioedema Network (CHAEN); Canadian Hereditary Angioedema Registry (CHAER) | Peter Waite | $192,000 |
| Canadian Inflammatory Myopathy Study Group (CIMS); Sir Mortimer B. Davis Jewish General Hospital (Lady Davis) | Dr. Valérie Leclair, Dr. Marie Hudson, and Dr. May Choi | $192,785 |
| Canadian Pediatric Neuroinflammatory Disorders (CPND) Registry; Hospital for Sick Children (SickKids) | Dr. Ann Yeh | $199,750 |
| Canadian Pulmonary Hypertension Registry (CPHR); University of British Columbia | Dr. John Swiston | $101,026 |
| Canadian Registry for Rare Systemic Autoinflammatory Diseases (CAN-SAID Registry); University of British Columbia and Provincial Health Services Authority (PHSA) | Dr. Lori Tucker, Dr. Kelly Brown, and Dr. Quynh Doan | $198,949 |
| Canadian Vasculitis Network Registry (CanVascR); Lawson Health Research Institute (LHRI) | Dr. Lillian Barra | $199,493 |
| Children’s Hospital of Eastern Ontario Research Institute Inc. (CHEO RI); Canadian PKU Registry and Canadian MPS Registry | Dr. Pranesh Chakraborty | $198,640 |
| Fighting Blindness Canada | Dr. Larissa Moniz | $110,880 |
| Research Institute of MUHC (McGill University Health Centre); Canadian Morphea Registry (C-MORE) | Dr. Elena Netchiporouk | $200,000 |
| The Canadian Alliance of Pediatric Rheumatology Investigators (CAPRI) Juvenile Idiopathic Arthritis (JIA) Registry and Pediatric Vasculitis Initiative (PedVas) and A Registry of Childhood Vasulitis (PedVas/ARChiVe); University of British Columbia; | Dr. David Cabral and Dr. Jaime Guzman | $195,207 |
| The Canadian Cystic Fibrosis Registry; Cystic Fibrosis Canada | Dr. Paul Eckford, Stephanie Cheng | $199,417 |
| University of British Columbia and Providence Health Care Society; Canadian Registry for Pulmonary Fibrosis (CARE-PF) | Dr. Christopher Ryerson | $172,350 |
| University of Calgary; Canadian Neuromuscular Disease Registry (CNDR) | Dr. Lawrence Korngut, Dr. Victoria Hodgkinson, Dr. Megan Crone, Dr. Gordon Jewett, and Adrienna Marie Dyck | $124,906 |
| University of Calgary; Canadian Registry for Amyloidosis Research (CRAR) | Dr. Nowell Fine and Dr. Margot Davis | $199,762 |
| World Federation of Hemophilia Gene Therapy Registry; World Federation of Hemophilia | Donna Coffin | $200,000 |
