Webform Node Recruiting Patient Partners - DRD Contact Information First name Last name Salutation Gender pronoun (Example: She/Her) Address City Province Postal code Telephone Email Patient Partner Eligibility Requirements: Please check to confirm that you meet these eligibility requirements. Experience supporting or living with a rare disease, either as a patient or caregiver ✓ Ability to work and deliberate in a diverse group setting and appreciate the contributions of those with various backgrounds, skill sets, and experience ✓ Ability to act with integrity and transparency, independent of specific interests ✓ Strong English verbal communication skills ✓ Patient Partner Knowledge and Experience Knowledge of and/or direct experience with rare disease patients and/or those with lived experience, including their specific treatment needs and challenges (e.g., board member, staff, or volunteer in a patient organization) (Required)Ability to articulate the experience of patients or families living with a rare disease; this could include providing insight into how the proposed improvements might impact patient care, as well as access to treatment and/or care (Required)Experience reviewing and evaluating proposals, and/or prior experience participating in a committee, advisory panel, or review board (Asset)Awareness of the regulatory, reimbursement, and health technology assessment processes in Canada, as this may help guide registry improvements that could address evidence gaps related to these pathways (Asset)Experience with or knowledge of rare disease patient registries (Asset)Familiarity with medical and scientific terminology related to rare diseases, registries, and research methodologies (Asset) Statement of Interest Please describe how your experience aligns with the Patient Partner role, outlined in the Eligibility section and Knowledge and Experience section. Please include how you would contribute your patient or caregiver perspective to enhance the Drugs for Rare Diseases RFP review process. Privacy Policy Please acknowledge you have read our✓ Privacy Policy CAPTCHA
Recruiting Patient Partners - DRD Contact Information First name Last name Salutation Gender pronoun (Example: She/Her) Address City Province Postal code Telephone Email Patient Partner Eligibility Requirements: Please check to confirm that you meet these eligibility requirements. Experience supporting or living with a rare disease, either as a patient or caregiver ✓ Ability to work and deliberate in a diverse group setting and appreciate the contributions of those with various backgrounds, skill sets, and experience ✓ Ability to act with integrity and transparency, independent of specific interests ✓ Strong English verbal communication skills ✓ Patient Partner Knowledge and Experience Knowledge of and/or direct experience with rare disease patients and/or those with lived experience, including their specific treatment needs and challenges (e.g., board member, staff, or volunteer in a patient organization) (Required)Ability to articulate the experience of patients or families living with a rare disease; this could include providing insight into how the proposed improvements might impact patient care, as well as access to treatment and/or care (Required)Experience reviewing and evaluating proposals, and/or prior experience participating in a committee, advisory panel, or review board (Asset)Awareness of the regulatory, reimbursement, and health technology assessment processes in Canada, as this may help guide registry improvements that could address evidence gaps related to these pathways (Asset)Experience with or knowledge of rare disease patient registries (Asset)Familiarity with medical and scientific terminology related to rare diseases, registries, and research methodologies (Asset) Statement of Interest Please describe how your experience aligns with the Patient Partner role, outlined in the Eligibility section and Knowledge and Experience section. Please include how you would contribute your patient or caregiver perspective to enhance the Drugs for Rare Diseases RFP review process. Privacy Policy Please acknowledge you have read our✓ Privacy Policy CAPTCHA
