Information Session: 2025-2026 Funding Opportunity for Rare Disease Registry Improvement

Date: April 2, 2025   
Time: 1:00 p.m. to 2:00 p.m. ET (free online event)

Canada’s Drug Agency is launching a new funding opportunity (via a Request for Proposals [RFP]) on March 26, 2025, for rare disease registries to enhance their capability and implement improvement initiatives to support decision-making in Canada related to drugs for rare diseases. This will mark our second funding opportunity for rare disease registries, following the successful launch of last year’s inaugural open call.

Join us on April 2, 2025, for an overview of this upcoming funding opportunity, where you will have an opportunity to:

• learn more about our work related to rare disease registries
• hear more details about the scope of this funding opportunity, how to apply, and our evaluation and selection process
• ask questions during a live question and answer forum.

Register now

The current funding opportunity is part of a suite of work at Canada’s Drug Agency to support registries and help broaden the evidence landscape for assessing drugs for rare diseases in Canada. This work is undertaken in support of the Government of Canada’s National Strategy for Drugs for Rare Diseases.

For more details about our work related to drugs for rare diseases, visit our website and subscribe to our eAlerts to be notified when the RFP opens.